TBI

Goodbye Summer!

August 5, 2013

Last week marked the unofficial end to our summer.  We seriously enjoyed our last week of practically any free time.  Elena didn’t have therapy at all last Tuesday, Thursday and Friday so we lived it up!  On Tuesday, Gramma came up and played with Laney while I got to run all the errands I had been stocking up.  Thursday, we went down to Gramma’s with my cousin and her two girls to swim and have lunch.  Elena has really enjoyed all her pool time this summer!  Friday, Gramma, Elena and I went to the Indiana State Museum to check out the Abraham Lincoln exhibit and had lunch on their terrace overlooking the canal.  It was such a fun week!  I wasn’t stressed about napping and schedules…what a reprieve!

But this week, so it begins.  Tomorrow will be an early morning as we head down to Elena’s new therapy in Mooresville.  I’m not sure how things will go…for her or me, so prayers this week will be much appreciated.  August is going to be a whirlwind of a month.  She’ll be in therapy 11 hours a week and for whatever reason, she has at least one doctor appointment a week this month.  So, needless to say, we’ll be girls on the go!

Elena’s been enjoying another nice little bump from the Botox the last couple weeks.  She’s been able to use her arms a little more, which is so encouraging.  It’s another reminder to us that she really can comprehend what we are asking of her, it’s just so hard for her little body to communicate that she understands.  We’re praying that the Botox continues to work as well as it has these last couple weeks.

I’ll leave you with a little video from last week.  Elena is borrowing a “switch” from a family we met here in the neighborhood.  Their son will be in Elena’s class at the Jackson Center.  A switch is basically a button that you plug into an adapted toy.  When Elena pushes the big button, it makes the toy turn on, teaching her cause and effect.  We tried the switch for the first time with her in therapy last week, and she got the hang of it very quickly!  I’ve never seen her be able to use her arms that much at once…it was so exciting for me to see.

Thanks for all the prayers this week!  I’ll let you know how everything goes!

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This is Elena. Our Light. You can see all the goodness and joy that shines from those deep blue eyes. She loves sneezes, yawns, industrial toilet flushes, automatic paper towel dispensers and The Star Spangled Banner. Music is her everything, specifically Moana, Frozen (really all Disney), Queen & Taylor Swift. Nothing makes her squeal quite like swimming, fast boat rides and her two brothers in trouble. In addition to her megawatt smile, Elena reminds us to cherish the smallest of victories, to live in the present, and to daily dwell in a posture of gratitude for every breath and every blessing.  

More About Our Story

I’m Emmalee, an ordinary gal born and raised in the Heartland. Wife to Chad, and Mom to Elena, Calvin & Turner, I spend most my days ridin’ dirty (literally so much trash) in my minivan carting kids to and fro. When I’m not being a Momager, I excel at self-care, cooking gourmet meals my kids won’t eat and deep-diving all the feelings. Most days, my attitude is gratitude, just taking life one step at a time.

Emmalee & Elena

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