Elena’s New Therapy

June 30, 2015

I’m totally playing catch up lately.  Our weeks are so busy I have only about an hour a week that I actually sit down at my computer, so updating the blog has been tough.  That doesn’t mean that there isn’t anything to share, however!

Elena is having a great summer.  She is SO stinking busy, but she is loving it.  As tough as it is to be running around all the time, it’s even tougher to be stuck at home with two kids!  Elena is spending two full days a week at the Jackson Center.  She has a preschool/education class in the morning and spends the afternoon in therapy.  She’s done really well enduring a full day with lots of hard work, which shows me how big she’s getting!  They’ve enjoyed two field trips already, one riding their adaptive bikes on the canal downtown and last week they went swimming in Carmel at the Monon Center.  It would be great to see her in action on the field trips with her friends, but love that she gets that independent time away from Cal and me.

In addition to those two days, she’s spending an hour a week with her teacher and speech therapist from school and an hour in the pool with her PT and OT.  It’s been great for everyone because without all the chaos and distraction from her peers at school, they have all been able to really see Elena’s personality and abilities shine through.  Not to mention, she LOVES her teachers and her teacher’s daughter, who is Elena’s age, that comes to play with her during her school sessions.  It’s all worked out really well this summer.

Lastly, she still works with Miss Lisa, her longtime OT, once a week and now we just added another speech session a week so she can learn how to work with a communication device.  I mentioned this a few posts back that this was something we were going to pursue this summer.  Elena really needs a way to effectively communicate with us, with her therapists and at school.  For about the last year and a half, we have really started seeing how much Elena understands and comprehends.  Quite honestly, I think we still underestimate her cognitive function.  We are confirming this by seeing how quickly she is catching on to using a device.

I’ll try to explain in the most basic terms possible.  Essentially, we give Elena a series of choices for example, listen to music, play with bubbles or something different.  We say them aloud while showing her a picture card of the activity (the visual piece is a non-factor right now, because of her vision impairment but we still show it to her) and ask her to activate a switch by turning her head to the left.  Elena’s dominant side is to the right, so she only turns left purposefully.  She’s pretty much made choices from the very first time we asked her to do so.  Which shows us she totally understands what we are asking her.  Right now, it’s pretty basic but eventually an electronic device will scroll through all the options/choices for her and she will again use the switch to make her choices.  As she progresses, the more choices and options will be available to her.  The magic of technology!

It’s pretty exciting for us to have to potential to understand what Elena is thinking and what she wants.  I can only imagine how it feels for her to be able to finally communicate a simple choice to us.  Up to this point, we all just guess based on her emotions.  I hate the thought of Elena feeling trapped in her body so we hope this will be the bridge she needs to really shine.

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This is Elena. Our Light. You can see all the goodness and joy that shines from those deep blue eyes. She loves sneezes, yawns, industrial toilet flushes, automatic paper towel dispensers and The Star Spangled Banner. Music is her everything, specifically Moana, Frozen (really all Disney), Queen & Taylor Swift. Nothing makes her squeal quite like swimming, fast boat rides and her two brothers in trouble. In addition to her megawatt smile, Elena reminds us to cherish the smallest of victories, to live in the present, and to daily dwell in a posture of gratitude for every breath and every blessing.  

More About Our Story

I’m Emmalee, an ordinary gal born and raised in the Heartland. Wife to Chad, and Mom to Elena, Calvin & Turner, I spend most my days ridin’ dirty (literally so much trash) in my minivan carting kids to and fro. When I’m not being a Momager, I excel at self-care, cooking gourmet meals my kids won’t eat and deep-diving all the feelings. Most days, my attitude is gratitude, just taking life one step at a time.

Emmalee & Elena

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