TBI

An Update

September 3, 2013

My grateful attitude of late has been serving me well.  Each day I’ve been waking up feeling extraordinarily blessed.  Sure, I still have plenty of “wants”, but I truly have been focusing on what I do have and it never fails to make me smile.  I’ve been lacking on my posts this month but it’s mainly due to the sheer chaos of our weeks are and perhaps that I don’t have as much venting to do with my grateful heart. So, sitting here in the Mooresville Starbucks, I thought I’d give you the run-down.

Elena had a great week last week at the Jackson Center.  She made it both days with a significantly less amount of tears.  We are LOVING the people there.  I have learned an incredible amount already from chatting with the staff and the other Moms.  Not only is it going to be a great workout for Elena, it’s been such a support to me in just the few weeks we’ve been there.  It’s an amazing place, where real miracles happen.  It’s such a blessing to watch as kids take their very first steps, overcome enormous physical obstacles, smile at each other and enjoy themselves at a place where people actually understand them.  We’re so, so happy to be part of it.

And as if on cue, just as we take a tick up in one area, we face another very serious issue that sets us back.  Elena’s left hip has worsened since her last x-ray 6 months ago.  Hip problems plague kids with CP and unfortunately for us, Elena’s little hip is already beginning to dislocate.  Her doctor recommended a surgery to see if it would help slow down the problem.  Unfortunately, once their hips begin to dislocate, there’s really no stopping it.  It’s more managing and slowing down the problem, not fixing it.  We’re facing some tough decisions, that as a parent, are excruciatingly difficult to make.  We would appreciate prayers for not only her hip, but for us as we will undoubtedly struggle to make the best decision for our sweet girl.

On a happier note, we are excited to be making a trip to Cincinnati Children’s hospital later this month, for Elena to attend a CP clinic there.  A CP clinic, is basically one HUGE doctors’ appointment with all the specialists who collaborate on Elena’s care together.  The reason we are going all the way to Cincinnati Children’s as opposed to Riley is just because at Riley, they don’t collaborate.  We really want to get a second opinion on everything we’re doing for Elena and see if there are any other ideas for her issues that she still struggles with.  We’re definitely looking forward to some fresh perspective!

Elena’s been working really hard on her head control and her sitting.  She had a great day in PT last week where she sat and watching her “BINGO” for 3 minutes!  Yay Elena!

We had a great Labor Day weekend.  Low key for once!  We did go down to my parent’s one day for a swim, which Elena loved!  Her legs were kicking in the water like crazy.  She’s definitely our little water bug!

As always, thank you for all your prayers.  This girl is one special little lady 🙂

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This is Elena. Our Light. You can see all the goodness and joy that shines from those deep blue eyes. She loves sneezes, yawns, industrial toilet flushes, automatic paper towel dispensers and The Star Spangled Banner. Music is her everything, specifically Moana, Frozen (really all Disney), Queen & Taylor Swift. Nothing makes her squeal quite like swimming, fast boat rides and her two brothers in trouble. In addition to her megawatt smile, Elena reminds us to cherish the smallest of victories, to live in the present, and to daily dwell in a posture of gratitude for every breath and every blessing.  

More About Our Story

I’m Emmalee, an ordinary gal born and raised in the Heartland. Wife to Chad, and Mom to Elena, Calvin & Turner, I spend most my days ridin’ dirty (literally so much trash) in my minivan carting kids to and fro. When I’m not being a Momager, I excel at self-care, cooking gourmet meals my kids won’t eat and deep-diving all the feelings. Most days, my attitude is gratitude, just taking life one step at a time.

Emmalee & Elena

Meet The Gals